Overwhelming!

I finally got to see my girl this morning.... Got here an hour or so ago. She looked awful when we got here...having muscle seizures like crazy! I expected to see her on the vent, but not to see her still having seizures. Her EEG was practically solid black with activity :( Just before i got here they had just bolused the magnesium and about 30 mins ago the seizure stopped outwardly and eeg looks much better. They use magn. a lot in pre-eclampsia patients. She also is on antibodics due to testing positive for strep. All vitals are good. Blood pressure is a little low, but they think that's from high versed levels- it contains preservatives that can become bad from prolonged use. We have her dropping down on versed now. Its a crazy mess of machines in here...not even room for a recliner today. I'll continue to update as things change. This is just such a rollercoaster...all the more reason to push for more awareness of Mitochondrial disorders! We needn't have these children suffer any longer.