Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Wednesday, August 10, 2011

So the seizure that started yesterday has led to an induced coma this morning...central line put in, arterial line for blood pressure and she's been intubated. They kept just putting a bandaid on the seizure,  but I was well aware it was going to require tons of meds to stop. Hopefully she'll come out of this seizure free...both the myoclonic and tonic clinic will be gone. I wasn't able to be there today when they started..makes me sad, but she was already not able to communicate yesterday when I left.  Please pray for her!

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