Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Friday, March 5, 2010

She must be 5 going on 16...

Conversation the other morning...

Me,"Since you are being so good you can watch cartoons while you take your medicine."

Averie, " So that's your deal, huh?"

Me," That's my deal..."

Averie shrugs her shoulders, looks at me and smiles, "sounds good mom."

How old is she!! The look on her face and the seriousness in her voice had me stifling a laugh! Making deals at age 5,...what does 6 have in store. Oh that reminds me! She really wants a horse cake this year for her birthday. Pink cake with a horse on it. So I am on the hunt for a suitable cake topper and grandpa will be making the cake! I am pretty sure riding lessons are in her future too!