....everythings different....again.

....sheesh...not what I expected this morning...Averie is not having the myoclonic siezures that's she's been having, BUT is having a normal tonic clinic siezure :( Her IV pulled out last night and she went from 1 ml of Versed/hr to nothing sending her into withdrawal. They were able to get the IV back in and started the Versed back at .05ml/hr. When I got here this morning she had just been given 50mg of Phenobarb. Hoping it kicks in soon. Her vitals are all good...oxygen too, but still no fun to watch her seize...I do feel like I know how to stop these tho. I prayed hard the myoclonic seizures would stop...I should have been more specific I guess. Love my baby so much and just want her back! Word on the street is doc is in talks with Stanford...let's hope so!!!