So we met with neurology this morning...obviously the pentobarb coma works while she is in it, but when she comes out the seizures start again :( So the new plan of action is to get her breathing on her own again, get her off some blood pressure meds and start pushing phenobarb levels higher and higher over the next few weeks. They don't feel its necessary to keep Averie at Stanford to do that, so my guess is we'll head back to Spokane as soon as she's stable. We will also leave here with her supply of EPI-743...I felt very hopeless today...like I might never get my Averie back, but then my faith takes over...who am I to try and predict what the outcome of all of this should be or will be? I must leave the outcome to the Lord. He will watch over her and he'll guide the doctors on this journey. I just have to do my job and have faith!
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