Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Wednesday, April 21, 2010

Wow! I can't believe that I spent a whole week celebrating Averie's birthday! Some people don't make birthdays a big deal, but I look at each as a HUGE milestone! I want her birthday to be something special to her...and selfishly special for me too! I love my little girl so much and watching her grow and stay healthy is amazing! 2 years ago I might not have believed she would still be here today. I guess that is a lesson for us all.
We packed a ton of fun into the week...birthday dinner at Five Guys selected by Papa Chuck because he was celebrating his birthday as well! Bowling on Saturday with aunts, friends, cousins and even Grandma Markee! Afterwards we came back home for dinner, gifts and cake! She got tons of clothes, a beauty salon from Auntie E and the most amazing pencil sharpener from Crazee Grandma! Also books coming from Ashlyn and a brand new "whompoot" (aka swimsuit ) from Aunt Marissa! Averie is very lucky to be loved so much by so many people! Then after gift opening it was (by special request ) " a cake with a horse on it!" courtesy of Papa Chuck!
If I got to wish a birthday wish......it would be that I get to do this many many many more times!

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