Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!















Thursday, May 6, 2010

Mother's Day approaching!

I am a basket of mixed emotions around Mother's Day. It is such a wonderful time of year to celebrate the moms in our lives! To show them how much they mean to us! I think its also a time to really think about the many blessing we receive as moms. I have really been LOOKING at Averie a lot lately...trying to burn the image of her at age 6 into my head. She is so beautiful, happy, strong and funny! Just this morning she asked if I was feeling better ( I'm on day two of a terrible head cold ) and when I told her "not really", she says to me..."mom, I'm sorry I gave you my sickness". So cute and funny! Also a reminder that her actual sickness is something I wish I could take from her!!! I want to give her all she needs to live a long healthy life, yet I know I am only capable of so much. Its so frustrating, but for all that I am still very thankful that she is HERE! I miss her brother terribly and I can't even explain the pain that wells up in me on holidays like these. I want to say that he should be here now, but my faith tells me he is in a place far better than this. My heart goes out to ALL the mom's who are missing their babies as much as I am. I hope that they can find the joy and peace in the next few days.

1 comment:

Shauna said...

Your an amazing Mom, Amber. I know Avery loves you so much, and so does Lane. You will always be his Mom. So, Happy Mothers Day to you!!