Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!















Tuesday, April 6, 2010

Easter



It was such a fun weekend! Easter baskets, lots of food, a visit from Grandma Neva and a awesome church service!! Everything went smooth...not a single seizure! Yay! Averie got to take her first communion...not probably in the traditional sense, but she wanted to participate so we let her!

videoAverie LOVES the church music! She never goes back with the other kids because she wants to sing! Then when sermon starts she sits quietly! I am so proud of my little munchkin!

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