Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Thursday, February 18, 2010


So different from our past EEGs! Normally we have to pin her down to get all the wires on her head. She normally screams and cries and becomes hysterical. This time we did a sedation EEG, which uses a drug that relaxes her, but doesn't completely shut her down. Basically had to hold her down for a few seconds and then she was out like a log! It was so stress free I almost didn't know what to do with myself! Actually had time to enjoy a cup of coffee with my mom! They were able to get a good reading and we should have the results soon. Pretty painless! She was adorable as she woke up..I suggested McDs for lunch and all she could mutter was "french toast sticks"! ha ha! that's my girl!

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