Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Friday, February 12, 2010

Bowling League!

Last Friday we went bowling for Averie's best friend Ashlyn's birthday! Averie was unsure of the whole thing for awhile. I had to let her discover it could be fun all on her own without forcing her. I got her shoes on, but she cried and cried that she didn't like the shoes as we looked for a ball. Finally I sat her on the bench, took off the shoes and told her she didn't have to bowl she could just watch. She sat on that bench and watched the birthday girl bowl for several frames, then all of a sudden! "Mommy..I want to try".

Back on went the shoes and she proceeded to bowl the rest of the game, side by side with her best friend. It was so cute watching them "bowl" . They would sit and watch the ball as it slowly made its way down the lane. Ha ha! As it reached the pins they would jump up and down and run back to see their score.

They totally worked as a team, each taking turns and amazingly not a single argument arose! It is so great that Averie has a friend to help her carry the ball when it gets too
heavy, who explains the game and is willing to wait for Averie to catch up! We love you Ashlyn!

1 comment:

Hailey Hope said...

Awe, this one made me teary eyed! Great memories to always have!! There were a couple times we weren't sure if the ball would actually make it all the way down the lane to knock any pins over, but sure enough... it made it every time! I'm so proud of our girls, and as you pointed out, they really did make it through without any arguments at all! I think this will definitely be an activity we do again!