So it seems we are fighting a bug of some sort? Today was suppose to be Averie's transition to high flow during day/bipap at night. About 3pm her heart rate started creeping up along with her temperature. She's also been a bit agitated...not very interested in communication and hardly making eye contact. Needless to say we put her back on bipap and drew labs so we could start antibiotics. Hopefully this is just a minor setback. If it is an infection that means a delay in gtube placement....no big deal really. Please continue your prayers....we still have a bit of a hill left to climb before getting to go home :)
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