Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Saturday, September 3, 2011

Fighting something...

So it seems we are fighting a bug of some sort? Today was suppose to be Averie's transition to high flow during day/bipap at night. About 3pm her heart rate started creeping up along with her temperature. She's also been a bit agitated...not very interested in communication and hardly making eye contact. Needless to say we put her back on bipap and drew labs so we could start antibiotics. Hopefully this is just a minor setback. If it is an infection that means a delay in gtube placement....no big deal really. Please continue your prayers....we still have a bit of a hill left to climb before getting to go home :)

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