Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!

Sunday, September 11, 2011

Bumps and bruises...

...its amazing how one event can change how we go about our daily lives. On Tuesday Justin, Ellery and I were on our way to the hospital to see Averie when out of nowhere we were side swiped by a huge red dodge truck. He was pulling out of a business into our lane of traffic and didn't see us. He plowed full force into the passenger side front wheel well. One second I'm looking at my phone and the next I'm trying to comprehend what I'm seeing....a huge red object intruding on my side of the car. Instinctively I closed my eyes and thats when I felt warm liquid running down my face. Immediately my thoughts are of Justin and Ellery and if they are hurt...blood must be coming from one of us, right? I recall asking Justin if he was bleeding...too afraid to open my eyes. when I finally did have the courage I realized it was just my coffee that had been flung throughout the whole car. As soon as Justin confirmed both of us were  alright he was out of the car and checking on Elle...she had been silent at first and then started screaming. He lifted her from her carseat and she clung like a little monkey to him. Totally thinking  "wtf! What just happened!" I'm sure! I realized as soon as I moved to get out that I probably should stay put...shooting pains in my neck and left shoulder were awful! I was sitting there waiting for medics and I could see we had been pushed across the oncoming traffic lane....its a miracle we weren't hit again. Needless to say I got to experience neck braces and a stretcher ride for the first time. Xrays and an MRI later it was determined my neck was fine. I still have tremendous shoulder, collarbone and neck pain as a souvenir. Along with some narly bruises across my chest...thanks to my seatbelt! I'm so thankful for our guardian angel because the wreck could have gone so much worse in so many ways.

Because of our little incident I had to take a couple days off from the hospital. In those two days Averie had made loads of progress. My parents were sending reports of Averie trying to talk...answering questions with head nods and shakes...and transitioning to regular nasal canulas :) So good to hear! I was very anxious to see her, but by thursday she had taken a step back. I was greeted by more seizures and now today a sinus infection that has put her back on bipap. I'm feeling pretty mad that I missed a good day :( I know they'll be more , but frankly I'm angry. I have total faith that this is just a minor setback...but I miss my baby!!! Adding to my frustration is I'm in constant pain...I can barely lift Ellery and when I do I want to cry...I make myself do it....and I'm great at pretending the pain isn't there  but oh, goodness it sure is! Come to think of it I need meds.

.... Just another bump in the road for this family. I'm looking forward to  car shopping, cabelas and a birthday dinner for my hubby tonight.

1 comment:

Heidi said...

So glad you're all ok, how scary. Continued prayers for Averie. Love to hear you are seeing progress! But sad you missed her good day, hugs to A and hope they've got you on some good meds!