EEG

So different from our past EEGs! Normally we have to pin her down to get all the wires on her head. She normally screams and cries and becomes hysterical. This time we did a sedation EEG, which uses a drug that relaxes her, but doesn't completely shut her down. Basically had to hold her down for a few seconds and then she was out like a log! It was so stress free I almost didn't know what to do with myself! Actually had time to enjoy a cup of coffee with my mom! They were able to get a good reading and we should have the results soon. Pretty painless! She was adorable as she woke up..I suggested McDs for lunch and all she could mutter was "french toast sticks"! ha ha! that's my girl!

..whats up with all these seizures!

Wow! What a roller coaster these last couple days have been! Three days in a row Averie has had increased breakthrough seizure activity. Yesterday she had at least two drop seizures ( or Atonic Seizures: Atonic means "without tone", so in a atonic seizure the muscles suddenly lose strength. The eyelids may droop, head can nod, the person can drop things or fall to the ground, but usually remains conscience.) She also had what we call "shakes" an exaggerated shiver type seizure where she has more control, but she can't use her eyes and it her head jerks slightly. This morning she had another drop seizure and a couple of shakes as well. Luckily we have a great team down at Emmanuel so we were able to get an appointment for an EEG scheduled and have already increased her Lamictal dose. In a couple of days we should see what this dose increase does. Until then we will just have to keep her from being her crazy hyper self ...take it easy...watch lots of movies and get lots of sleep. I am confident we can solve this little problem. Right now she is sleeping away...hopefully she wakes up in a good mood!