Averie Elizabeth

Averie Elizabeth

Who is Averie?

Averie passed away Sunday November 13th at 3:33am due to complications of her mitochondrial disorder. My beautiful princess is finally healed and in heaven with her brother :)

Averie is a crazy, beautiful, smart energetic 7 year old who keeps everyone on their toes! Averie has been fighting Alpers since her first seizure in 2004 at the age of 4. Her older brother passed away from Alpers when she was just 1. Just recently she became a big sister for the first time! Averie is strong willed and stubborn...I believe that's what keeps her going on the days her disorder creates obstacles for her. She is my special little girl who I love one cow, two moons and three fences big!















Monday, November 14, 2011

In memory of...

We invite you to participate in the celebration of Averie's life by joining us in a balloon release at 12 noon pst on Friday. We will be meeting on the Long Bridge in Sandpoint for those who are able to join us. For everyone else I ask you to release a balloon from wherever you are around the world. I couldn't think of a better way to invite everyone who have followed Averie's journey to be a part of her memorial.

Pictures of your balloon release are welcome <3

Thank you all!
-Amber & Justin

3 comments:

Eyes that watch, ears that hear, a heart that feels said...

Amber, my heart just aches for you and your family. I will be at work but will release a balloon for her. Just know that your children went to god with full hearts because of their mommy's devoted fighting love. I'm praying for you!

Clara-Leigh said...

You are in our family''s thoughts and constant prayers in this very tough time. Our son has a mitochondrial DNA depletion disorder also. We released balloons today with his special needs class at Homedale Elementary School. Thank you for sharing Averie's beautiful life with us. We will hold you in our hearts and prayers always.
Love,
Clara-Leigh Evans
www.mitolifewindow.blogspot.com

tony hargadon said...

Hi I am the father of identical twin boys of witch one sadly passed away on 13 November 2014 to an unknown illness . He had a seizure while in Bed but found him and got him treated . The doctors are speculating Alpers but am awaiting results . My heart goes out to you and your family tragic yet so little is known and so few people know about alpers