Maybe its one of the toughest things I have to do...watching Averie have seizure activity. When I see seizures start I find myself tensing up...waiting...counting the seconds that go by as I wait for the seizure to stop. Sometimes its within seconds of starting and sometimes, like today, there are a series of them. I watch as Averie's eyelids close part way, her head freezes into place and she moves her tongue ever so slightly over her lips. Sometimes if she's mid activity- like eating- her hand will lose control or move up and down rapidly. As she comes out of the seizure she picks up right where she left off...sometimes mid sentence ...sometimes to finish getting the food to her mouth. I always ask her if she's ok and she looks at me like she doesn't understand what I mean. I feel better knowing that she doesn't put a lot of thought into her seizures. She either doesn't remember them or is so use to them its her "normal". Makes me very curious as to what goes on in that little head of hers?
Today she's had a series of these episodes and I'm on pins and needles...never knowing if they'll stop or end up requiring intervention. I hope they'll stop..we really want to go down to the river and swim.