I have to start somewhere...

wow...I have been saying I was going to do this for a long time. Its not that I don't have a lot to say, but taking that step to put fingers to keyboard and tell it like it is has been a hard one. I did a lot of reading over the last few days after learning of another family who is losing their battle with Alpers disorder. It has made me sad and angry. I know that our story isn't over and there is so much that could be learned by me telling what goes on...good and bad. Please bare with me as I learn how to work this Blog and as I gain my voice. My greatest wish is that other families will find this and find answers, inspiration, hope and some humor. I won't pretend for one second that I am an expert on Mito Disorders...ha ha..that would be funny( since I haven't even had a science class since 10th grade)...but what I am expert on and know everything about, is being Averie's mom.