Big Changes!

Averie's life is about to change big time!

We are getting ready for our final week living with my parents and preparing to move into our own apartment! Averie is super excited and has already picked out her new room. I can't wait not to share a room with her and she excited to get out all her toys that have been packed for the last year.

Its a big change to a totally new area. Its a small community surrounded by very good hospitals and schools. I wanted to make sure that all her medical needs would still be met. In this case we will be near Sacred Heart Hospital in Spokane which has the leading neurology department in the region. We will also be remaining in close contact with Averie's mito specialist at Seattle Children's.

Another huge change and a big milestone for Averie is that she will be starting school! First grade...I can't believe it! She is getting so big! School for her has already not gone as planned...as in...she hasn't started and will be 3 weeks behind due to unforeseen court matters. I'm disappointed it got a bit jumbled up, but in the end I know this will not set her back. I am going to be working closely with the school and will make sure there is an IEP in place to make sure her medical needs are accommodated. More than likely this means she will start out school at half days and will work up to a full day. My guess is this won't take long unless she physically can't handle such long days. I hope to have this all ready to go next week! I really want her to get to experience "normal" first grade life! Right now she is socially a bit behind. She doesn't understand fully how to play with other kids her age...like the other day when her and some friends were playing and she came running up to me saying ," Mommy! Libby hit me on the head and called me a duck...why did she do that? why did she walk in a circle hitting our heads saying duck, duck, duck?" I said," Averie, its a game called Duck, Duck, Goose." She said," well, I got up and ran away so she couldn't get me." Lol...it was so funny and at the same time I felt terrible that she didn't understand the game. I want her to know these things and I KNOW she is capable of learning. I am scared to let her go off and be in the school's care, but I know it will be a good learning experience for both of us!

As soon as she starts school and we get moved, I'll update everyone! Wish us luck, because the next couple weeks should be very very interesting!

FED UP!

I started to post this in my Facebook status, but #1 it was too long and #2 this is probably a better forum and people can choose to read it or not. I am writing it tho because this IS part of what Averie is dealing with. To gloss over it and pretend its not there would be a disservice to other families who might be going thru the same thing...so below is my rant...take it as you will...

I don't fucking get it! How is it possible to take care of a little girl who needs $100+ in meds/vitamins not covered by insurance a month when her father thinks that LESS than $200 in child support is all he needs to pay???? You have to be kidding me! I have to find a way to buy Averie's CoQ10 because her father wont! He thinks all her medical should come out of child support...they are two separate things...medical support is in its own category! I can't wait till he gets his official orders...even then he'll only pay the minimum when clearly it is going to take more than that to take care of Averie! Right now I think we are on the cheap side of meeting her needs...I can only for see the costs going UP UP UP!

It might actually require him working harder than he is...although then I guess that won't leave as much time for dance lessons and what not...To add to all of this he is constantly telling me I am LAZY for not having found a job yet( I'd like to see how easy it is for him after 8 years of being a stay at home mom).... then he turns around and tells me he doesn't want Averie in Public school or daycare because of her MEDICAL condition!...how am I suppose to work then? Ugh! ...never mind that I am going to have to balance it all...full time school and paying for Averie to have a place to live, food, school supplies.....Oh yes...I'm so very lazy...

I wish he could just see that this whole thing is about Averie...just Averie and only Averie...I can give a rats ass if I have money for me...I really don't care, but when it comes to my daughter she deserves to be taken care of properly.

So there...that's my rant...maybe not my best writing to date, but sometimes anger does that...my mind is racing because I am trying to make this all work. Its so sad that millions of women are dealing with this exact same thing every day! Where are the real men who make sacrifices and work hard for their families? Are they out there!?